Wednesday, June 11, 2008

MD Anderson

I am relaxing at the hotel after a very long day! We spent the day in Houston at MD Anderson Hospital. We met with a neuro-oncologist, Dr. Puduballi, to get a third opinion. Travis and I really liked him, he spent a lot of time explaining things to us. Of course, he confirmed that Travis has what is most likely a glioma tumor. He had a surgeon take a took at the MRI and the neurosurgeon felt confident that it could be biopsied. Dr. Puduballi strongly disagreed with doing nothing but observe closely, like the Mayo Clinic. He also said that removing the tumor is not possible. He recommended a biopsy to confirm it's a tumor and follow with radiation treatment. He said that the tumor has been growing very slowly for a long time. Travis' brain has had time to adapt and the fibers and neurons have moved around the tumor. That is why he has very few symptoms despite the fairly large size of the tumor. He said it will continue to slowly grow and cause more symptoms over time. He said that we are not in an urgent situation due to the slow growth. We have time to plan and think about how we want to proceed. Most likely, we will do the recommended treatment. Dr. Puduballi was very open and honest with us. He told us that this is a rare tumor for a 34 year old male to have. Gliomas are typically seen in children and agressive gliomas in the elderly. Unfortunately, since it's rare, there is no standard of care. Each doctor is offering their best opinion. That's why we've had such conflicting opinions. We are hoping to meet with the neurosurgeon here before we come home. Then next week we meet with Dr. Spetzler and see why he thinks he can remove most of the tumor.

It is a little frustrating and difficult to get such differing opinions from such qualified doctors. We realize how much we have to rely on the Lord to guide our decisions and make the best choice for Travis and our family. Travis is wonderful and said that he is not discouraged. He is so strong! I sure do love that man!

5 comments:

Anonymous said...

Still thinking of you guys, and are here to answer any questions (Mike).

Hi, this is Mike. I spend quite a bit of time at St. Joe's (Barrow). I do not know Dr. Spetzler personally but know of him and work with many of the residents and fellows that work with him and others. He's well known and respected. I do know all the radiologists who read your CT's and/or MRI's. I think of you often. Hang in there.

Caryn said...

Isn't it amazing just how much modern medicine can do and how far it has come?

I think you have to follow the Lord and your heart until you find the answer that fits your family. We were told so many different things for Braden, and had to choose our own path-and it worked out well, thankfully.

Enjoy your time away and try to relax!

Kelee said...

What a day you guys! Its good that you are getting all these opinions to make your decision. We are thinking of you....get some rest...all of those tests and meeting with the doctors is not only physically tiring, its emotionally draining. We love you guys!

Kate said...

When I was seeing different specialists during my pregnancy with Sadie I also got opposite opinions. I realized that just like regular people have different opinions on things, doctors do the same things with medical issues. They just don't always know. You both really sound like you're seeing things clearly and will figure out the best path with the Lord at your side. I think everyone is amazed by both of you.

Nichole Barney said...

I am so glad you liked the doctor and he was helpful with information. I know with your faith the spirit will guide you as to what is the best for him. You guys are amazing!